Dear all
I'm
writing to let you know that I have been assessed as having Asperger's
Syndrome, a form of autism (in fact, since the standard American
diagnostic manual was revised last year, Asperger's is no longer
recognised as a separate diagnosis, but it's easier to continue to talk
about it as most people have some idea of what it entails - in short, it
is a form of autism without developmental or language difficulties).
It
is not uncommon for Asperger's to be overlooked in women as we tend to
become adept at masking it and developing coping strategies - indeed, it
is only relatively recently (in the last couple of years) that it began
to occur to me that this could be the basis of things I have struggled
with for as long as I can remember. It was in fact reading students'
support plans that initially pointed me in the right direction.
I
had my assessment last November and then thought long and hard about
being open about it in the office. I didn't want to look as if I was
seeking special treatment or making excuses; and of course there was an
element of concern around what effect disclosure might have on my career
prospects. But this was ultimately outweighed by other factors. I see
being autistic (and I prefer to describe myself with an adjective rather
than as 'having a condition', and certainly not a 'disorder') as akin
to being left handed: it's a difference from the norm which is not
intrinsically problematic, but becomes so in a world designed and
understood by and for the majority. Indeed, there are advantages which I
bring to the workplace: attention to detail; commitment to accuracy,
organisation, and an innovative approach to problem solving based on an
ability to get to the heart of issues. I'm also calm in a crisis,
because I don't pick up on other people's emotional reactions, and I
have a strong awareness and understanding of the difficulties others -
particularly students - with 'invisible disabilities' (not only autism)
face.
Clearly
this has had an impact on how I experience, react to, and am perceived
in the workplace. Particular manifestations of AS that are relevant for
me in this context include:
- Being uncomfortable with physical contact with and close physical proximity to other people
- Difficulty following a conversation when there are distractions or more than one person talking
- Need to focus on one task at a time - Aspies can't multi-task! Interruption can seriously disrupt my ability to get work done
- Inability to 'read' people's emotions through facial expressions or body language
- Tendency to take things literally; to want to get to the point, and an inability to engage in (or indeed understand the purpose of) 'small talk'
- Need for clarity if you want me to do something - I can't 'read between the lines' of what you are saying and find the hidden or obscured meaning. If you want something, ask directly!
- Limited capacity for socialising - I do like being social, and making friends, but I'm much more comfortable talking to people individually rather than socialising in large groups. If I need to deal with a lot of people, or for a long time, it's helpful to have a bit of quiet time and space to recover afterwards.
- Not always knowing the 'appropriate' way to react or tone to take in a given situation - I have to learn this through trial and error rather than picking it up instinctively. Yes, I can be blunt - because this is how I would prefer people to be with me, rather than beating about the bush. It takes a while to learn that not everyone appreciates this approach!
These
may all become more of an issue at times of increased stress,
especially around change, which is another thing we find difficult to
deal with.
Autistic
people are often described as lacking 'empathy' - and indeed, I don't
have that superpower of being able to read your feelings in your face.
But that doesn't mean I don't care about how you're feeling - I do. I
might just need you to tell me when something's wrong. I may not react
in a conventional way but I do want to help in the best way I can -
which is more likely to be practical than emotional.
[Boss] and [Colleague] and the few other people I have spoken to already have been
very supportive and understanding, and suggested that it might be
helpful to me and the rest of the team if I am able to share this
information with everyone, and in this way - hence this rather long
email. I would stress that I'm not being open because I'm looking for
special treatment, but more to enable others to better understand me
(and the way I react sometimes) and to get the best out of me. A
secondary reason is to raise awareness more generally that Aspergers is
something that affects women (contrary to popular belief) but is often
not picked up in childhood for a number of reasons. If anyone would like
to know more I have a few books I can lend, and will - of course - be
happy to talk at great length about it!
Finally,
apologies to any of you who have (particularly in the stressful times
of the past) found me difficult to deal with because of this.
Very best
[Me]
Sarah, Reading through the "manifestations" of AS that you posted I recognised elements of them - to a greater or lesser degree - in myself and in many of the people I know. Your post has helped me to understand why.
ReplyDeleteOne of my enthusiasms is public transport and in particular timetables and the way they are presented to the public. I feel that the industry fails in lack of attention to detail and consistency in presenting information and that a kit more "rivet counting" in its approach would not go amiss.
By the way - I miss your "Chertsey" blogs. What's happening to her?
Jim
Nothing's happening to Chertsey - I just got really bad at blogging. In fact I'm back off to the boat tomorrow, for the first time since October. I thought if I expanded the blog a bit (with dg as always my unattainable model) I might - just might - get motivated to write more. I suspect that members of the Aspie/autistic community are heavily represented in the world of historic narriow boating and transport enthusiasts more generally. That's why they're such a congenial bunch!
ReplyDeleteWell Sarah, not a disability, more of an explanation of why you are good at some areas of life, that some of us are useless at! Everything has it's pluses and minuses, not good or bad. Celebrate the plus things AS gives you, I think we all have a little Autism in us somewhere.
ReplyDeleteHi Sarah, What a refreshing approach to include your colleagues and us in the explanation of how the Aspergers manifests itself in your life. I can only think this will be received positively and help all better understand the condition. Good luck with the blog .... I'll add it to my blog roll.
ReplyDeleteHi Sarah, What a refreshing approach to include your colleagues and us in the explanation of how the Aspergers manifests itself in your life. I can only think this will be received positively and help all better understand the condition. Good luck with the blog .... I'll add it to my blog roll.
ReplyDeleteWell done for letting your colleagues know. As son David says "it's a disability, not a visibility". It definitely helps to let people know what the situation is. I don't think that there are more autistic people than there used to be, I think that more people begin to recognise what has always been in them. Our Morris side contains at least two aspies (including son David), and several (myself included) with strong tendancies that way - I don't think I'm Aspie, but I am definitely a geek. I think it is strongly represented in any engineering/technical/computing fields - which is why it is common among boaters (and engineers, and programmers).
ReplyDeleteI think being open about most things is good. Well done Sarah.
ReplyDeleteLes
Brilliant post Sarah! I too score high on the Autism spectrum scale exam. Your post provided a thoughtful, concise description of the way this difference manifests for you and many others. We are fortunate to live in an age that offers a chance to properly recognise and discuss the merits as well as the drawbacks of Asperger's. Celebrate your differences. They are a part of the wonder of being you. Bright Blessings. Jaq xxx
ReplyDeleteWell written Sarah. Our son Peter was diagnosed with AS as an adult (like you born too early for child diagnosis) and found it was a great relief to find he wasn't just 'a useless person'. Life is still very tough for him, he's well inside the spectrum, but he has found that knowing, and telling others, especially work, has been an improvement for him. Most people do make allowances for it. So it's very wise of you to tell people.
ReplyDeleteKath (nb Herbie)